Life has become a good deal more challenging since my first anniversary post. My mobility has been much reduced, I experience breathlessness, severe pain is a frequent problem and life is sometimes viewed through an opioid haze. I now get extensive help for most basic domestic tasks. In addition to the help from friends, we have been learning about a range of professional and volunteer services for providing assistance and health care in the home.
Fortunately, much of the deterioration has been relatively recent and, although the situation is dire, hope is not yet completely abandoned. Quantities of tears have been shed in a process which I hope is moving me toward greater reconciliation of past pain and disappointments.
So many people are doing their very best so that I should not want for anything and should stay as much as is possible in a positive frame of mind. It is quite difficult dealing with the physical aspects of the disease but life is by no means bereft of interest, friendship and discovery. Thanks so much to everyone.
